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Table 3 Survey 2: feelings about being approached for an observational research study

From: Parental opinions regarding consent for observational research of no or minimal risk in the pediatric intensive care unit

QuestionStrongly DisagreeDisagreeNeitherAgreeStrongly Agree
I would feel stressed about being approached for this research study7 (14%)11 (22%)9 (18%)17 (34%)6 (12%)
I would feel stressed about having to make a decision regarding my child’s participation in this research study7 (14%)17 (34%)4 (8%)17 (34%)5 (10%)
I would feel excited about the opportunity to have my child participate in a research study7 (14%)9 (18%)25 (50%)5 (10%)4 (8%)
I would fear the risks of participation in the research study17 (34%)14 (28%)10 (20%)6 (12%)3 (6%)
I would feel too emotionally burdened to make the decision5 (10%)10 (20%)10 (20%)19 (38%)6 (12%)
I would feel too overwhelmed to make the decision about my child’s participation at that time5 (10%)12 (24%)7 (14%)16 (32%)10 (20%)
I would feel irritated about being asked to participate in a research study at this time8 (16%)11 (22%)11 (22%)15 (30%)5 (10%)