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Table 3 Survey 2: feelings about being approached for an observational research study

From: Parental opinions regarding consent for observational research of no or minimal risk in the pediatric intensive care unit

Question

Strongly Disagree

Disagree

Neither

Agree

Strongly Agree

I would feel stressed about being approached for this research study

7 (14%)

11 (22%)

9 (18%)

17 (34%)

6 (12%)

I would feel stressed about having to make a decision regarding my child’s participation in this research study

7 (14%)

17 (34%)

4 (8%)

17 (34%)

5 (10%)

I would feel excited about the opportunity to have my child participate in a research study

7 (14%)

9 (18%)

25 (50%)

5 (10%)

4 (8%)

I would fear the risks of participation in the research study

17 (34%)

14 (28%)

10 (20%)

6 (12%)

3 (6%)

I would feel too emotionally burdened to make the decision

5 (10%)

10 (20%)

10 (20%)

19 (38%)

6 (12%)

I would feel too overwhelmed to make the decision about my child’s participation at that time

5 (10%)

12 (24%)

7 (14%)

16 (32%)

10 (20%)

I would feel irritated about being asked to participate in a research study at this time

8 (16%)

11 (22%)

11 (22%)

15 (30%)

5 (10%)